Posts

My Own View: #Trump Two Faced

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# Trump   is two faced.  Telling Germany they shouldn't be doing business with Russia for their gas, when on the other hand Trump wants Russia to join the G7 and is meeting  # Putin   and it was the Russians that helped him get to where he is now! - double standards me thinks.  Trump can't even run the USA right, and he thinks he can stick his nose in to how other countries are run? He is wrecking the USA by imposing trade tariffs on the likes of China, yet he hates it when China puts tariffs on USA products, he is also banning people from various countries from entering the USA including people from North Korea yet wants things between there and the USA to be as sweet as -  # TrumpTwoFaced These views are my own and of no other company or association I am involved with or may work for. photo taken from cnn.com

Thursday 26th April

So a blog update. First of all I want to thank a good friend of mine, Ami, she is helping me get a few things sorted out in my life. My benefits and also getting the correct diagnosis for a health issue. I have got my ESA appeal tomorrow. I've decided to kick my tenancy support worker in to touch as my original ESA50 form he filled in was not up to standard and was missing a lot of information. Ami has re-filled in the form with more information, which we have gained from my GP. She has made my GP look at my health issues, and is pushing for a diagnosis of Fibromyalgia. My bad back problem is Kyphoscoliosis and also Scoliosis (details below), with this and a on going breathing issue and chest pain, I'm not in good shape. Kyphoscoliosis   is a deformity of the spine characterized by abnormal curvature of the vertebral column in two planes (coronal and sagittal). It is a combination of kyphosis and scoliosis. It is seen in many disorders such as Syringomyelia and can cau

Not a bad day (Monday 9th April 2018)

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Not a bad day today, Gemma dropped me a text and we ventured down Mumbles, its changed since I was last there with a few new shops!, plus a new CO-OP store. We went to Verdis for an ice cream and then looked for bits on the beach, and I got creative and done a bit of art work Thank you for a lovely afternoon Gemma, love you loads!

Festival time 2018

So its coming up again, festival time 2018. This year a blog all about it. Reason for it being its easier than updating a web page! So on the agenda this year BIG LOVE FESTIVAL, NOZSTOCK and TRUEFEST. I'm volunteering at 2, and driving a friend up to be DJ on the main stage at Nozstock. Watch this space for info! BIG LOVE FESTIVAL was fantastic, really enjoyed. The volunteer shift Neil and I were down for was a night time one, helping the First Aid / Welfare. One good thing, this year we were also allocated a bed each in a dorm, which came in useful after the night shift. Highlights of the festival were for me Sian Evans and also Craig Charles with his Funk Soul DJ set. CLICK FOR PHOTOS

MY CHRISTMAS & NEW YEAR LOOK BACK & FORWARD POST

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Looking back at 2017 , it started off ok seeing it in with Neil and Jamie, which was wonderful.  Volunteering at Big Love Festival and True Fest, and going to Nozstock. Managed to get out for a bit of dancing at some point.  Health wise, things on a downward path, but my doctor is getting on to it with tests and scans in the new year. Been fighting with the DWP, but thanks to my Family Housing Support Worker, facing them head on. This year has been the year I have also tried to expand my world. Joining Rose Hill Quarry Group, became chairperson of Seaview Terrace Green Space Group and joined a local Cuppa & Chat Group plus helped out at the local food bank a bit. Made some fab new friends along the way like Dylan, Janet, Peter, Gemma, Kaz, Ami, Leonie and too many more to mention. 2018 , well going to get my ducks all in a row and make things happen Sending love to you all, see you soon

Bed Days

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Its been one of those days today, get up and go just didn't show up. Been in bed all day, back has been really bad, head headache all day. Got up a few times to get cuppa and toilet visits. I've been keeping a diary since the start of the year, and reading it don't make for good reading, way to many bed days, and days when I feel down, and days when I am aching. Over the past few months the total number of bed days ends up at 17, not counting March

DWP & The so called System

It's fucked up, that's what it is! Went for a medical for my ESA just over a month ago, the dreaded brown envelope of doom came last week...  its amazing what one brown envelope can do to your day - DWP, how on earth can I go from 18 points at the last appeal down to 6, when nothing has changed only got worse? - go figure I posted the above on Facebook, everyone was supportive until one woman (who is no longer a friend) put.... Barbie Sue Why do you need esa? You dont look ill .why are you unable to work? You are aware PIP/ DLA/ ESA look at your pics n activity on fb ? the conversation went on.... Vikki   What a loaded question and why are you demanding someone disclose a health or other condition to you in public! There are plenty of people living with all kinds of conditions and illnesses who 'don't look ill' and many people make great effort to hide what they live with. Not surprising really if they are faced with comments such as yours. Paul   Barbie