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Showing posts with the label #AnkylosingSpondylitis

27th July - Another Bad Health Day

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 So another really bad, bad health day. Woke up hardly able to move, in total agony 😔. From my neck right down to my knees, and feeling very sick with it. It' just as well I have an empty bucket close to the bed along with a flask of water. Really hate getting days like this, seem to be getting them at least once every two weeks. When I am not this bad I still get some days when I am unable to get downstairs, so am really a prisoner in my flat, unable to get out side in to the fresh air. It really is doing my head in when I am stuck in. If I was in a bungalow or a downstairs flat, at least I would stand a fighting chance of getting out side. I was sent some exercises to do from physio at Morriston Hospital, done some, but not all yet. I find it is best to do them on my pine wooden chair as it don't move when I am trying to move. I have got another virtual video call coming up on 5th August in the afternoon, but before that an appointment at Singleton Hospital. I have spoken to

Health Update Concern - 5th July 2021

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Well, my theory of being ok for the first week after doing my Imraldi injection has been blown out of the water well and truly. Woke up at about 5:30am this morning with terrible neck pain, which is also affecting the top part of my back and shoulders. Along with the pain, I have got like a high-pitched sound in my head. Not too sure what is causing it. Think it could very well be a trapped nerve, more or less curtain about that, but could be wrong.  This better go soon, doing my head in. What a way to start a new week. I am pleased I got out yesterday to see a friend whose birthday it was and his dog, Jet. If you suffer with Spondylitis check out this great site with a very supportive community   https://www.myspondylitisteam.com/

Health Latest - 3rd July 2021

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Health Latest, posted 3rd July 2021 Well, Thursday just gone I did my 2 weekly injection, Imraldi (that's its brand name, I can spell that with no problems!), as normal, it hurts, but its nothing compared to how things turn out any number of days AFTER doing it. It was Wednesday 30th June, the day before the injection. I woke up with slight back pain, which normal for me on a scale of 1 to 10 about a 4. Everything was going fine for the first few hours, I pottered about the flat doing this and that. I managed to get out for some fresh air, a quick wobble around the block and back.  Got in and felt a bit sleepy, so had a nap, as it was warm, I decided to lay down in the bedroom, it is always nice and cool in there. A few hours later I was awoken by a sharp shooting pain in my back up to my neck and across to my shoulders, on my scale it was either an 8 or 9. I had to get to my pain killers and quick, which is not easy. Anyway, the pain kept at that level until about 10pm when it sta

Health Update - 18th June 2021

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Health Update - 18th June 2021 So, following an MRI scan the other week, today I had a telephone consultation with a specialist from the hospital. Confirmed, I have Osteoarthritis in my back to go with my Ankylosing Spondylitis (which my 2 weekly injection works on, which explains towards the end of the two weeks I am in more pain). It is due to wear and tear.  The specialist asked if I have ever lifted anything heavy on a regular basis when I was working, as far as I know I have never lifted anything on a regular basis! They want to do more investigating when they open up for appointments again.  The specialist likes my way of describing things. Every day pain (that's the osteo) bad day pain (when it's a really bad flair up). The specialist noticed some things had been written in my notes but no follow up on them.  He wants to find out why and get further investigations done, Fibromyalgia being one of them. I like this specialist.  He is pleased I am doing light exercises, and

Health update 5th May 2020

As well as having Ankylosing Spondylitis and carpal tunnel syndrome - which are both bad enough to have to live with! Yesterday I had a telephone consultation with a spinal specialist at Morriston Hospital (due to the COVID-19 lock down this seems to be the new normal), he said I have problems with bone wear and disc problem which is causing a trapped nerve which is causing the pain and problems I am having, along with bone growths. Reading the letter he sent me it says; "The MRI scan from 18 months ago shows a degree of cervical spondylosis at C6/7 with some impingement of the C7 nerve roots which is probably transiently causing these nurological symptoms" In the information leaflet that was sent with it, it says; " Numbness, clumsiness and weakness in arms and legs are likely due to pressure on the spinal cord in the neck. If there is severe cord compression on your MRI, then further damage is likely ", it goes on to say " Once spinal cord damag