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Showing posts with the label #Fibromyalgia

Continuing struggle with Fibromyalgia

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Continuing struggle with Fibromyalgia As I have said before, it is a bit like an amplifier, turning up the volume on my pain and other issues. Just because I've not written about it, don't mean to say I'm not living it. My pain level most days is around 4 to 6 out of 10. The last few days, however, things have not been too good, as my Facebook posts show! THURSDAY 29th FEB Well, as you may know, I am always in pain to some degree and do push myself on a regular basis.  Well in the last few hours been getting twinges which point to one thing, a fibro flare up. It's been a while since I've had one, but here it comes, wonder what time it will show up? FRIDAY 1st MARCH Well I've been awake since about 2am, in agony, pain at about 9 out of 10, am all tingly and feels like bad pins and needles, with horrendous aches - it's one hell of a fibro flare up. Off to bed, still not right after flare up, feels different to past ones in a way. SATURDAY 2nd MARCH Didn't

My Life In Blog Form

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My first ever book is out! MY LIFE IN BLOG FORM Welcome to my first ever book, it contains a number of my blogs, and some added extra bits from other social media outlets of mine. It follows my life since the first lockdown and focuses on my life. I do like cooking, and enjoy watching Saturday Kitchen as well as other shows! A cut of profits from the sale of each book will go to a Fibromyalgia charity, so please do buy a copy, either physical or electronic. It's on Amazon right now at this address https://amzn.eu/d/7C9NgbS It's in paperback or for kindle

October 2023

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October 2023   This is the month of my holiday to Austria & Slovenia! Wednesday 3rd October: Damn it, fibromyalgia strikes in the night again. My whole body is in agony, feeling extremely tingly and achy. Not even sure I can remember a warning sign of its impending visit yesterday 🥺 Not a way to be woken up in the night that's for sure. Think I may have forgotten my gabapentin though, so that could be why it's dropped by 😔 Thursday 5th October: Well, a sluggish day so far today, got Nero later (he always cheers me up big time, bless him) Doctor will be phoning later to discuss my diabetic readings of the last few days. Also today am waiting on Amazon delivery, and I think one other parcel too. My mind is going... I thought I had Amazon order coming today... guess who forgot to check out his order? never mind, will come tomorrow now. Had Nero today, he’s a fantastic dog, he looks after me, he’s like my shadow! Friday 6th October: Just gone 5am What the.... my lower back,

Talking Point Fibromyalgia

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I have been trying to raise awareness about Fibromyalgia for ages, and also have a car sticker in my car. In any health blog I try to include Fibromyalgia and how is it affecting how I am feeling. I have been a sufferer of Fibromyalgia for a number of years, it coupled with Ankylosing Spondylitis makes my life a living hell.  I think of Fibro as an amplifier for pain, seems to double or triple the pain I suffer with. Plus I've been getting more forgetful forgetting simple things like words and what I am doing. It also makes my body tingle and go itchy.  If I forget to take my gabapentin it's like asking for my body to be attacked. Why does Fibro do this to me? It's really affecting my life, I just hate it. My GP doesn't seem to know. Fibromyalgia seems to be shroud in mystery! If you suffer with Fibromyalgia , share your experiences here so others could benefit from anything we post. Useful websites to help: NHS https://www.nhs.uk/conditions/fibromyalgia/ UK CHAR

August 2023 - More in-depth update

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Another new month, we sure are zooming through 2023 aren't we! August started with a visit to Neath Port Talbot hospital and an appointment in the Rheumatology department. I had to score my aches and pains and the Fibromyalgia. I think I may have under scored them some what! Time to keep taking a record for this month starting with 2nd August! WEDNESDAY 2nd: Feeling run down and achy, about 5 out of 10. I did have an appointment to see the nurse at the surgery, but emailed to cancel as feeling less than well enough to venture out. BP FIRST THING 124 / 83    BLOOD SUGAR 6.9 THURSDAY 3rd: I HAD to venture out to get some bits. Went to Home Bargains, was pushing the trolley and my hip started playing up. My aches and pains this morning started as about a 4 out of 10. By the time I got back to the car it turned in to 6 out of 10. Still not finished I made my way to Morrisons. By the time I finished in there I was feeling very run down, every bone in my body and every joint was achy

July 2023

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  As a new month starts, my lavender in the garden is looking good, the sweet peas have grown bloomed and are now looking a mess!, not seen many bumblebees about, hope the fuzzy little things are ok. Picked up my glasses from Specsavers, very happy with them, I also ordered two pairs from Glasses Direct, happy with those as well. This month is the month for getting back out in to life, I've booked to hire a camper van and am going to a music festival, volunteering at Big Love. It's been a while, but it has to be done.  My diabetes is under control, the diabetic nurse phoned and is happy, appointment made for later in the month to see her. Aches and pains - yes, still there, and the fibromyalgia is up to its tricks again! Well, I managed Big Love Festival, I managed the crowds, my anxiety did show its face in the form of sickness and stomach aches, but I did it. Life and socialising can resume for me now proper! I am so proud of myself for pushing me to do it. Hired a camper van

June 2023

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June 2023 Another month, same ol' stuff going on. At the start of the month I managed a walk, only a gentle walk, but a walk nether the less, my body didn't thank me for it, day after the walk I was in agony.  Couldn't do anything around the flat at all. The dry weather although nice, is really not agreeing with me. As the humid weather kicked in around about the 9th of June my breathing became difficult. Waking up in bed full of sweat wasn't pleasant, combine that with chronic pain and Fibromyalgia amplifying it ... Not good. On Wednesday 14th I've got another laser eye zapping to get through... not looking forward to it though. As I get ready to head to the hospital, Wednesday 14th June, I am hoping it's the last of the laser zapping, I just want my vision properly back in my left eye.  Bit on the achy side again this morning which is making getting ready difficult, but as normal, I struggle on. Well, the laser eye zapping went ok, can see a bit clearer, but n

May 2023

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  In to the fifth month of the year , still getting tired a lot, my blood pressure seems to be improving, and my diabetic blood sugar levels seem to be within a good range. Eye wise, I am due some laser zapping again to clear up as one specialist called it, frosting behind the lens that was put in, after that my vision should be ok, so am now on a waiting list for that!   5 th May 2023: Woke up by great pain in my right arm, right shoulder, top of my back and neck, feeling sick with the pain again too. Pain is at 9 out of 10 I would say.   8 th May 2023: Well, it’s my 48 th birthday today, kind of a quiet one, uneventful, but that’s ok. Pain at a capable level, felt a little queasy this morning but not sick though.   9 th May 2023: Managed to venture out today with Neil. Had a little walk along the beach foot path, got some good fresh sea air and some moody photos, here is one of them.... photo © Philip (Phil) England MMXX!!! 16th May 2023: Last week I managed to

April 2023

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  April 2023, and it started of with great pain.  Saturday 1st April 2023: Started off the new month with pain at about 5 out of 10, this increased to about 8 out of 10 as the day went on. Early to bed, pain killers had, lower back is in terrible agony, hurts to sit and stand - heating pad on, which is helping. Sunday 2 nd April 2023: Still very achy but less than I was yesterday when I went to bed, pain at about 6 out of 10. Seem to have a runny nose too. Saturday 8th April: So there are Semaglutide supply issues again. People seem to be getting hold of it somehow and selling it on the black market, the Semaglutide helps people lose weight it's been discovered, and people are using that and buying it. It's annoying because I need it to control my blood sugar, it's taken me ages to get to where I am, I'm off the insulin now, only having to inject once a week for my diabetes instead of every day, don't have to worry about constant testing (pricking my fingers to g

March in to a new month

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March it is then , a new month and St. David’s Day!, just had to escape the flat today so ended up in Gloucester with Neil. Not too bad a day out all be it a bit cold and damp.   Thursday 2 nd March: Well after yesterday, I am in agony today. My back and my left hip are in great pain, lower back is the worst!     I hope it eases soon. The sun is out and shining in the window so will sit with my back to the window so the sun can work its magic, would rather the heat of the sun than force myself to take co-codamol. Saturday 4th March: So, it is Saturday, and I feel bored, trapped and stuck in a rut.  Look what happened when I tried to break out on Wednesday.... I caught a chill, and to make things worse, the friend I took with me also caught a chill.... I feel guilty  I'm too scared to try getting out of the rut I am stuck in again in case I catch something else!, you know, I think I may be becoming paranoid…. Wednesday 8th March: It's a snow day, and I'm sure I&

2nd Month of 2023

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  Oh damn, fibro flare up, can hear the pain in my head, painful tingle all over... welcome to the new month 😓 Well, 1 st of the month, and after being woken up in the early hours, I got some cleaning bits done! Then I was looking in the hall cupboard for a trowel which I thought I had, as was going to go outside and take out dead growth from my tubs, and came over sick and seemed to have made my pain levels rise again.... damn it! I had such good intentions for this afternoon.   2 nd day of the month, its update time! Eyes: got more laser zapping tomorrow on my good eye to keep it good, will chase my bad eye appointment at the same time! Health: feeling better today than yesterday, I didn't really pace myself yesterday, as soon as I felt better, I threw myself into doing things, will I ever learn? Friday 3rd Feb: at the diabetic eye clinic for more laser zapping on my right eye, the good one to keep it good, but also had a scan of my left eye. It seems something

December 2022 - Brrrr what a cold one

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  December - the start of Winter... photo taken by Philip England And since the start of this month I have been without my Imraldi injection, this has seemed to cause more issues for my body to deal with, seems the fibromyalgia has taken note of this and been playing with me. I couldn't get my Ozempic, once weekly injection for my diabetes. Nowhere in Swansea had the 1mg dosage I normally have, I phoned NHS111 and even they couldn't locate any stock in the whole of South or West Wales. My GP, Dr Burke, managed to find out that my chemist had the 0.5mg dosage variety, so will have to double up on that one for now. This cold weather hasn't helped matters. My breathing has been hurting, I've been in pain my back and other parts, and haven't really been able to keep warm and stay warm. I’ve once again had issues with sickness first thing, especially today, Friday 16th December. Not too sure why, but took half a day to clear. Speaking of things clearing, my left eye is s