April 2025 Updates

2nd April: Trying to juggle fibromyalgia and helping my Dad who's not well is really getting to me. It's all falling on me to help keep the house tidy, keep the kitchen clean, and try to push the house forward to get sorted and moved along.

Sometimes I just want to go to my sister's and shout at her entire family (I know that will cause more issues than it will solve), I'm not well and having to do it all is really annoying. 

I have some wonderful friends who have been a massive help along the way, such as Neil, who helped me clean when Dad was in the hospital and after he got out for a vit. And then there's Carl, who was a star and a massive help as he got the kitchen cupboards on the wall. 

I also have friends who listen to my outpourings. Thank you to those, Neil and Carl.... big time. 

I try to push on through the Fibro and pain, but am very aware of my limits and know I do push through them, then wonder why I am rendered useless the next day. I get very frustrated when I can't do what I want to do to help my Dad, in fact that is the general rule in my entire life. I'm so fed up of having to watch what I can do. 

I do need to take some me time, but know this won't be possible for a while.

I'm going away for a week in May, setting off late on the 5th May and returning at some point on the 11th May. My friend Bill is planning a trip to Llanelli to see my Dad and give him a hand, which will be a huge help, be good to have another opinion on how Dad is doing. Just wish Gill and her family would step up to help.

7th April: Finally picked up TV for Dad from Currys, not the correct one as ordered, 40" seemed to illude the Llanelli store. Decided as they had 43" in stock to pay the little extra to get it home. Won't be shopping in that store again!, I will stick to Amazon from now on.

Dad's computer decided it didn't want to work properly, seemed to not like the password I had set on it, stupid thing. I know what I will be doing on Wednesday.

Neil came with me to Dad's, worked wonders on the windows, and he told me a friend had passed away, Steve (aka Tuc), met him for the first time via Juliet. He was a great guy, always had time for people. Felt rather down when I got home so went to bed early.

8th April: Woke up in early hours in pain again, I know I over did yesterday again, also sick again. Felt like I wanted to crack open my left arm again to scratch inside. This seems to be becoming a regular thing.

Went to the doctors this morning - she's happy with my diabetes and my liver too. I was given an info sheet on sleep, some tips there, most of which I've tried.

Diabetic meds changed in dosage, with a new tablet added to protect my liver more.

AND No work done at dentist! clear bill of teethy-peg health.

9th April: Toilet Issues Yesterday at the doctors, I couldn't get my words out, and ended up telling my doctor I struggled to make the bed, finding it painful and exhausting and taking all day.

While this is true, it's not the whole picture. I wanted to tell her the reason behind having to make the bed from scratch, it's not being able to get out of bed quick enough to get to the toilet. My toilet needs are a sign of being independent, and if I fail at doing this I fail at being an independent person.

It's the pain slowing me down, preventing me from getting out of bed to get there in time.

I feel embarrassed to even bring this up at all, but feel needs must.

13th April: Pain and Toilet - 3am: Woken up in agony needing the toilet, here I go again, having to try to manoeuvre myself up and out of bed.

7:15am: Didn't get out of bed in time had slight accident again, 2nd time this week. Make bed from scratch again. 

14th April: Had a pain in my right side most of the afternoon and evening, now got fibro twinges in the back and left arm and head sounds like signals all trying to get in all at once.... I really do hate fibromyalgia.

17th April: Damn it, back in agony again, must get up and take my Dad shopping today. I seem to be stuck in a pain rut.... have been for many years, and it just keeps reminding me of such. 

After managing to escape my flat, struggle down the stairs ...

Back home, feeling drained, I could do with a few hours with my head on my pillow, but few things to do first, and someone is due to pop by.

Pain level today peaked at 6.

18th April - 4:30am: Owch, went to get out of bed to go to the toilet, felt ok, ent to stand up, left knee is weak, almost fell on the floor, quick thinking grabbed the bedroom door, but almost shut my hand in it. Almost never made it to the toilet.

One of those days on the horizon? Current pain level at a 5.

Just a reminder....