April 2025
2nd April: Trying to juggle fibromyalgia and life isn't easy.
I have some wonderful friends who have been a massive help along the way, then there's Carl, who was a star and a massive help as he got the kitchen cupboards on the wall.
I also have friends who listen to my outpourings. Thank you to those, Neil and Carl.... big time.
I try to push on through the Fibro and pain, but am very aware of my limits and know I do push through them, then wonder why I am rendered useless the next day. I get very frustrated when I can't do what I want to do, in fact that is the general rule in my entire life. I'm so fed up of having to watch what I can do.
I do need to take some me time, but know this won't be possible for a while.
I'm going away for a week in May, setting off late on the 5th May and returning at some point on the 11th May.
7th April: Finally picked up new TV for Dad from Currys, not the correct one as ordered, 40" seemed to illude the Llanelli store. Decided as they had 43" in stock to pay the little extra to get it home. Won't be shopping in that store again!, I will stick to Amazon from now on.
8th April: Woke up in early hours in pain again, I know I over did yesterday again, also sick again. Felt like I wanted to crack open my left arm again to scratch inside. This seems to be becoming a regular thing.
Went to the doctors this morning - she's happy with my diabetes and my liver too. I was given an info sheet on sleep, some tips there, most of which I've tried.
Diabetic meds changed in dosage, with a new tablet added to protect my liver more.
AND No work done at dentist! clear bill of teethy-peg health.
9th April: Toilet Issues Yesterday at the doctors, I couldn't get my words out, and ended up telling my doctor I struggled to make the bed, finding it painful and exhausting and taking all day.
While this is true, it's not the whole picture. I wanted to tell her the reason behind having to make the bed from scratch, it's not being able to get out of bed quick enough to get to the toilet. My toilet needs are a sign of being independent, and if I fail at doing this I fail at being an independent person.
It's the pain slowing me down, preventing me from getting out of bed to get there in time.
I feel embarrassed to even bring this up at all, but feel needs must.
13th April: Pain and Toilet - 3am: Woken up in agony needing the toilet, here I go again, having to try to manoeuvre myself up and out of bed.
7:15am: Didn't get out of bed in time had slight accident again, 2nd time this week. Make bed from scratch again.
14th April: Had a pain in my right side most of the afternoon and evening, now got fibro twinges in the back and left arm and head sounds like signals all trying to get in all at once.... I really do hate fibromyalgia.
17th April: Damn it, back in agony again, seem to be stuck in a pain rut.... have been for many years, and it just keeps reminding me of such.
After managing to escape my flat, struggle down the stairs ....
Back home, feeling drained, I could do with a few hours with my head on my pillow, but few things to do first, and someone is due to pop by. Pain level today peaked at 6.
18th April - 4:30am: Owch, went to get out of bed to go to the toilet, felt ok, ent to stand up, left knee is weak, almost fell on the floor, quick thinking grabbed the bedroom door, but almost shut my hand in it. Almost never made it to the toilet.
One of those days on the horizon? Current pain level at a 5.
Just a reminder....
Will keep trying it over the next few days.
The reason for getting these is to ease the pain a bit more so I can enjoy my holiday a bit more, I don't want to make these a long term fixture in my life, just a temporary assist.
I await the Persistent Pain Service to sort out a medication review going forward.
21st April: Pain this morning at a 5 bordering on a 6 - it's there well and truly (guess the pain patch only keeps reducing pain if it stays on me and don't end up stuck to the duvet!)
23rd April: Woke up in agony in the night, checked by blood pressure (see my other blog post at http://www.itsmyblog.me.uk/2025/04/fibro-blood-pressure.html). In agony when I got home, after doing bits when I got home... will I ever learn not to push myself?
24th April: Very achy and sick with it again this morning, feeling fed up, but had forgotten the patch last night - some of the patches seem to loose their sticking power and become attached to other things when I move about in the night. I max out my gabapentin daily.
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