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Showing posts with the label #Fibro

Fibro - It Continues

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  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain

Fibro in my world

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  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p

Continuing struggle with Fibromyalgia

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Continuing struggle with Fibromyalgia As I have said before, it is a bit like an amplifier, turning up the volume on my pain and other issues. Just because I've not written about it, don't mean to say I'm not living it. My pain level most days is around 4 to 6 out of 10. The last few days, however, things have not been too good, as my Facebook posts show! THURSDAY 29th FEB Well, as you may know, I am always in pain to some degree and do push myself on a regular basis.  Well in the last few hours been getting twinges which point to one thing, a fibro flare up. It's been a while since I've had one, but here it comes, wonder what time it will show up? FRIDAY 1st MARCH Well I've been awake since about 2am, in agony, pain at about 9 out of 10, am all tingly and feels like bad pins and needles, with horrendous aches - it's one hell of a fibro flare up. Off to bed, still not right after flare up, feels different to past ones in a way. SATURDAY 2nd MARCH Didn't

My Life In Blog Form

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My first ever book is out! MY LIFE IN BLOG FORM Welcome to my first ever book, it contains a number of my blogs, and some added extra bits from other social media outlets of mine. It follows my life since the first lockdown and focuses on my life. I do like cooking, and enjoy watching Saturday Kitchen as well as other shows! A cut of profits from the sale of each book will go to a Fibromyalgia charity, so please do buy a copy, either physical or electronic. It's on Amazon right now at this address https://amzn.eu/d/7C9NgbS It's in paperback or for kindle

October 2023

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October 2023   This is the month of my holiday to Austria & Slovenia! Wednesday 3rd October: Damn it, fibromyalgia strikes in the night again. My whole body is in agony, feeling extremely tingly and achy. Not even sure I can remember a warning sign of its impending visit yesterday 🥺 Not a way to be woken up in the night that's for sure. Think I may have forgotten my gabapentin though, so that could be why it's dropped by 😔 Thursday 5th October: Well, a sluggish day so far today, got Nero later (he always cheers me up big time, bless him) Doctor will be phoning later to discuss my diabetic readings of the last few days. Also today am waiting on Amazon delivery, and I think one other parcel too. My mind is going... I thought I had Amazon order coming today... guess who forgot to check out his order? never mind, will come tomorrow now. Had Nero today, he’s a fantastic dog, he looks after me, he’s like my shadow! Friday 6th October: Just gone 5am What the.... my lower back,

Talking Point Fibromyalgia

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I have been trying to raise awareness about Fibromyalgia for ages, and also have a car sticker in my car. In any health blog I try to include Fibromyalgia and how is it affecting how I am feeling. I have been a sufferer of Fibromyalgia for a number of years, it coupled with Ankylosing Spondylitis makes my life a living hell.  I think of Fibro as an amplifier for pain, seems to double or triple the pain I suffer with. Plus I've been getting more forgetful forgetting simple things like words and what I am doing. It also makes my body tingle and go itchy.  If I forget to take my gabapentin it's like asking for my body to be attacked. Why does Fibro do this to me? It's really affecting my life, I just hate it. My GP doesn't seem to know. Fibromyalgia seems to be shroud in mystery! If you suffer with Fibromyalgia , share your experiences here so others could benefit from anything we post. Useful websites to help: NHS https://www.nhs.uk/conditions/fibromyalgia/ UK CHAR