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Showing posts with the label #Fibro

September

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New month, sane old problems, September... what will you bring? 1st : Health, bit achy, thumping headache. Issues going on (cant metion them) but.... Waiting on calls 😩 Not knowing whats happening 😩 Not knowing how to proceed 😩 Just need contact thats all, just a reply to an email, a quick text. 2nd : My back is killing me this morning but I have got things to do. Not too sure how I will manage but lets see shall we. Been a long and stressful day, with wmotions pulled from one way to the other. Put my head on the pillow tried to close my eyes, couldn't. Gonna be a long night. Cone on tablets make me drowsy... please   5th : Not been update to my blog last few days due to my Dad being in hospital, sadly he passed away this morning. I wasnt there when he passed, I wanted to be, I am sort of beating myself up for it, but it was out of my control. I think he went when he did so I didn't see it, he knew what I was like when Mum passed. I will miss my Dad. I feel holl...

Fibromyalgia Awareness

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# Fibromyalgia is not nice to live with, it ramps up pain and has so many other aspects including #brainfog #fatigue and the inability to regulate body #temperature, if you know someone who suffers with it, don't knock them until you do your research Thank You   #fibro #disability #pain #chronicpain #restless #interruptedsleep #life 

July 2025

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A new month, July, half way through the year, nothing really changes much 1st : Hot and humid day, feeling like crap. Read all about humidity and fibro at http://www.itsmyblog.me.uk/2025/06/high-humidity-fibromyalgia.html 2nd : Fresher today thank goodness but feeling drained, more sleep needed. 3rd : Been awake since 3am, damn Fibro 😩 must push on with the day, Nero day today, must get my tablets done, and next week must order them before going away the following week dog & cat sitting. 4th : Neck and shoulders achy today and lower part off back. Looked out of the window of the bedroom and noticed my marigold plants had fallen over. 5th : Feeling tired today, hardly.no energy, but achy too, nothing too bad. 6th : Lower back and left hip sending shooting pains up my back again - damn it, really hurts and gets me when least expected. Going to get hot and humid later in the week again. 7th : Damn this shooting pain. Thursday can't come soon enough, pain meds review w...

June 2025

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1st : A new month, same issues. Feeling very achy and full of wind today, pain about a 5. Let me put this here as a reference to the levels of pain. 2nd : I should get out of bed, but hip killing and feeling strange again, neck also in agony. I'm going to try to push through the pain, had a gabapentin and two paracetamol about half hour ago (keep some at side of bed). Pain at a distracting 5 . 3rd : Slight pain, normal aches, a bit of an ok kind of day, pain at a 3 . Got lots done today. 4th : 4:30am - Hell, fibro flare up, in great pain currently, hate being woken up by it. Pain is at a 8 . I need the toilet but can hardly move. Gabapentin and paracetamol ( lucky I keep then by the side of the bed ) as soon as I can move a little and can reach the socket on the wall will turn the electric blanket on as heat helps. It's always the same after a day of relative normality, and a day of getting things done, wallop, my body hits back, why don't I ever see this on...

High Humidity & Fibromyalgia

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High humidity can exacerbate fibromyalgia symptoms for some individuals. Increased humidity can make it harder for the body to regulate temperature, potentially leading to overheating and increased pain, fatigue, and discomfort. Additionally, some people with fibromyalgia experience worsened symptoms in response to fluctuating barometric pressure, which often accompanies changes in humidity.  Here's a more detailed explanation: Temperature Regulation:   High humidity can hinder the body's ability to cool itself through sweat evaporation, potentially causing overheating and discomfort.  Pain and Discomfort:   Some individuals with fibromyalgia report increased pain, stiffness, and headaches during periods of high humidity.  Barometric Pressure:   Changes in barometric pressure, often associated with weather fluctuations and high humidity, can also trigger or worsen fibromyalgia symptoms.  Individual Differences:   It's important to note that not...

May 2025

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We are in May, the month of my 50th. The month started ok, not too achy or in too much pain, about a 4 on the scale of things. 2nd : Had runs in the middle of the night but didn't get out of bed quick enough again. Just as I thought things were looking better.... false sense of security on that one. Pain at about 5. . Over did it again today, the pain killers patches not working, as pain is at about a 7 right now, things to do but can't. Here's a reminder.... 3rd : Woke up feeling sick, but not sick because of pain, pain level by the way at about 4, the sick feeling feels more like anxiety. Why is it setting in? well my mind is getting prepared for my birthday break. I need a few days to get myself in the right frame of mind. It's not easy and can't just be done. I also had to change the sheet on my bed again, had another accident in bed and couldn't get out of bed fast enough. I'm fed up of this. Over did it again today, pain in the ...

April 2025

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2nd April : Trying to juggle fibromyalgia and life isn't easy. I have some wonderful friends who have been a massive help along the way, then there's Carl, who was a star and a massive help as he got the kitchen cupboards on the wall.  I also have friends who listen to my outpourings. Thank you to those, Neil and Carl.... big time.  I try to push on through the Fibro and pain, but am very aware of my limits and know I do push through them, then wonder why I am rendered useless the next day. I get very frustrated when I can't do what I want to do, in fact that is the general rule in my entire life. I'm so fed up of having to watch what I can do .  I do need to take some me time, but know this won't be possible for a while. I'm going away for a week in May, setting off late on the 5th May and returning at some point on the 11th May.  7th April : Finally picked up new TV for Dad from Currys, not the correct one as ordered, 40" seemed to illude the ...

Birthday Getaway

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I maybe suffering with pain on a daily basis, but a holiday is needed.  When you are a pain sufferer you have to at very least try to put on a brave face and get through it, all the while coping the best you can. Planning is the thing to do. In the first instance accomodation on holiday, finding something on the ground floor, which I managed to do, and something with a walk in shower, again managed to do  Next thing is assistance at the airports, both of which are booked and confirmed by Air France in an email, merci! Then there is extra pain killing, in this case pain killing patches to aid with that, again, an issue solved. The countdown is on! JUNE THOUGHT : Another trip is needed!

Fibro Diary

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APRIL 3RD: Woke up with thumping headache at 3am, my back in excruciating pain and left hip feels like it's itchy inside, want to crack it open and scoop the itch out, and got trapped wind too. Couldn't get back off to sleep. As day went on pain subsided just a bit, mostly due in part to gabapentin and CBD oil.

Trial Error Pain and PIP

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Wednesday 19th March: Well, I may have found a way to wake up not feeling too bad, but it's not sustainable. CBD oil every hour. Draw backs are lack of sleep, and I need to buy more CBD oil, almost used it all up. Have a feeling my need for CBD may rise ... so will need an oil tanker full. Pain is still there but I can get out of bed - it's at about 4 out of 10.  That was a stupid experiment.... I need sleep  #fibromyalgia #constantpain #chronicpain Thursday 20th March: Woops, I left my electric blanket on high heat, if I was a joint of meat I would be well cooked, it's as hot as hell under the duvet. I normally turn it down to half, but I was so tired due to lack of sleep last night. Can't tell what my body is doing as I think I cooked my back and other joints! I MUST phone Rheumatology at NPT hospital today, chase things up. So, after cooking myself when I slept, am up and moving about, but as I'm doing so can now feel the aches and pains, obviously the heat jus...

Persistent Pain Service - My Journey

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Persistent Pain Service - My Journey Went to the initial Persistent Pain Service group. Learnt all about the service, which I found most interesting. Found out about the different types of pain, and it seems I fall in to a mixed pain group. Also the differences between accute and persistent pain. It was over with quicker than I thought it would be, seems like it was a gateway to the service. Now to figure out what pathway I need to take. On the sheet we were given its got a few options, I do feel a mix of them all would benefit me, including group therapy... at some stage. If you suffer with persistent pain, then please do get your health care provider or doctor to get in touch with the Persistent Pain Service in your local area. In the Swansea, Neath, Port Talbot and Bridgend area its based at NPT Hospital, and can be contacted on Port Talbot 862418 , and search Google for SBUHB Persistent Pain Here is a useful link for you  https://sbuhb.nhs.wales/hospitals/a-z-services/improving...

Fibro - It Continues

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  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain ...

Fibro in my world

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  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p...