Philip (Phil) England

  1st : 1:45am - My stomach feels like its on a spin cycle, my head is running a marathon and I can't seem to sleep 😩 Later - managed to get to Dad's house, its getting harder to go there, need to go back to do last few bits, but a break is needed. 2nd : Feel like I've been running after my mind all night, exhausted, and woke up crying. My back and neck killing me. I feel like shit this morning. 😭 Edit -  I need to get out of bed for my meds, and just discovered my right hip hurts too 😩 Finally.out of bed at around 11am, achy and my mind elsewhere. Been asked to decide on insurance cover for my father's house for the period going forward, how on earth can I even think about that in my mind state? I feel like going back to bed 😥 feel like 🤯 3rd : Day of Dad's funeral - Not too sure how I will get through today. Got a thumping headache and I feel sick again, neck and shoulders in agony and left hip too.  My sister worked wonders for after the funer...

New month, sane old problems, September... what will you bring? 1st : Health, bit achy, thumping headache. Issues going on (cant metion them) but.... Waiting on calls 😩 Not knowing whats happening 😩 Not knowing how to proceed 😩 Just need contact thats all, just a reply to an email, a quick text. 2nd : My back is killing me this morning but I have got things to do. Not too sure how I will manage but lets see shall we. Been a long and stressful day, with wmotions pulled from one way to the other. Put my head on the pillow tried to close my eyes, couldn't. Gonna be a long night. Cone on tablets make me drowsy... please   5th : Not been update to my blog last few days due to my Dad being in hospital, sadly he passed away this morning. I wasnt there when he passed, I wanted to be, I am sort of beating myself up for it, but it was out of my control. I think he went when he did so I didn't see it, he knew what I was like when Mum passed. I will miss my Dad. I feel holl...

# Fibromyalgia is not nice to live with, it ramps up pain and has so many other aspects including #brainfog #fatigue and the inability to regulate body #temperature, if you know someone who suffers with it, don't knock them until you do your research Thank You   #fibro #disability #pain #chronicpain #restless #interruptedsleep #life 

A new month, July, half way through the year, nothing really changes much 1st : Hot and humid day, feeling like crap. Read all about humidity and fibro at http://www.itsmyblog.me.uk/2025/06/high-humidity-fibromyalgia.html 2nd : Fresher today thank goodness but feeling drained, more sleep needed. 3rd : Been awake since 3am, damn Fibro 😩 must push on with the day, Nero day today, must get my tablets done, and next week must order them before going away the following week dog & cat sitting. 4th : Neck and shoulders achy today and lower part off back. Looked out of the window of the bedroom and noticed my marigold plants had fallen over. 5th : Feeling tired today, hardly.no energy, but achy too, nothing too bad. 6th : Lower back and left hip sending shooting pains up my back again - damn it, really hurts and gets me when least expected. Going to get hot and humid later in the week again. 7th : Damn this shooting pain. Thursday can't come soon enough, pain meds review w...

1st : A new month, same issues. Feeling very achy and full of wind today, pain about a 5. Let me put this here as a reference to the levels of pain. 2nd : I should get out of bed, but hip killing and feeling strange again, neck also in agony. I'm going to try to push through the pain, had a gabapentin and two paracetamol about half hour ago (keep some at side of bed). Pain at a distracting 5 . 3rd : Slight pain, normal aches, a bit of an ok kind of day, pain at a 3 . Got lots done today. 4th : 4:30am - Hell, fibro flare up, in great pain currently, hate being woken up by it. Pain is at a 8 . I need the toilet but can hardly move. Gabapentin and paracetamol ( lucky I keep then by the side of the bed ) as soon as I can move a little and can reach the socket on the wall will turn the electric blanket on as heat helps. It's always the same after a day of relative normality, and a day of getting things done, wallop, my body hits back, why don't I ever see this on...

High humidity can exacerbate fibromyalgia symptoms for some individuals. Increased humidity can make it harder for the body to regulate temperature, potentially leading to overheating and increased pain, fatigue, and discomfort. Additionally, some people with fibromyalgia experience worsened symptoms in response to fluctuating barometric pressure, which often accompanies changes in humidity.  Here's a more detailed explanation: Temperature Regulation:   High humidity can hinder the body's ability to cool itself through sweat evaporation, potentially causing overheating and discomfort.  Pain and Discomfort:   Some individuals with fibromyalgia report increased pain, stiffness, and headaches during periods of high humidity.  Barometric Pressure:   Changes in barometric pressure, often associated with weather fluctuations and high humidity, can also trigger or worsen fibromyalgia symptoms.  Individual Differences:   It's important to note that not...

Well, fell asleep after arriving at accommodation. Didn't get anything to eat, no cuppa. Hey ho, must have been tired, was a long sleep from about 6:30pm to just now, very peaceful here. Need a shower before tackling the day and driving the Nissan.  Driving on the wrong side and using different arms to do that they normally do isn't easy. Love the motorways here, but they are toll roads, so need to pay to use them. WEDS 7TH MAY Pains when I woke up about a 5. Last night after all the driving they were about a 9. After a great holiday, and driving a car that I didn't like, its great to be home to my own pillow and bed. Also great to be home to a decent cup of tea! Visited Luxembourg and also visited Strasbourg. On the way to Strasbourg discovered a great radio station, Nostaglgie - https://nostalgie-radio.de Kind of missing France, the UK sucks 😞 

I'm 50 on 8th May, and what have I accomplished in life, not much, in fact things have slipped since my father got diagnosed with cancer. When I say ' not much ' I have done some exciting things in life. A months trial at Asian Sound Radio in Manchester, being at the change over from Radio Tircoed to SA Radio Live, getting my show on to Upload Radio on DAB in a few locations, launching my show on shortwave AND also being on Bro Radio. I've also been on the online spin off station Moorlands Gold, and currently exclusively on Islands FM. Back to my Dad, I quit my live radio show because I wanted to be there for him. Once out of hospital, I've been popping to see him and help with a few things around the house and taking him out shopping and just out for a change of scenery. I seem to be doing everything I possibly can do for him. My sister hasn't even been down to see him and that really gets to me, because it's all on me. I feel guilty because I...

2nd April : Trying to juggle fibromyalgia and life isn't easy. I have some wonderful friends who have been a massive help along the way, then there's Carl, who was a star and a massive help as he got the kitchen cupboards on the wall.  I also have friends who listen to my outpourings. Thank you to those, Neil and Carl.... big time.  I try to push on through the Fibro and pain, but am very aware of my limits and know I do push through them, then wonder why I am rendered useless the next day. I get very frustrated when I can't do what I want to do, in fact that is the general rule in my entire life. I'm so fed up of having to watch what I can do .  I do need to take some me time, but know this won't be possible for a while. I'm going away for a week in May, setting off late on the 5th May and returning at some point on the 11th May.  7th April : Finally picked up new TV for Dad from Currys, not the correct one as ordered, 40" seemed to illude the ...

APRIL 3RD: Woke up with thumping headache at 3am, my back in excruciating pain and left hip feels like it's itchy inside, want to crack it open and scoop the itch out, and got trapped wind too. Couldn't get back off to sleep. As day went on pain subsided just a bit, mostly due in part to gabapentin and CBD oil.

Wednesday 19th March: Well, I may have found a way to wake up not feeling too bad, but it's not sustainable. CBD oil every hour. Draw backs are lack of sleep, and I need to buy more CBD oil, almost used it all up. Have a feeling my need for CBD may rise ... so will need an oil tanker full. Pain is still there but I can get out of bed - it's at about 4 out of 10.  That was a stupid experiment.... I need sleep  #fibromyalgia #constantpain #chronicpain Thursday 20th March: Woops, I left my electric blanket on high heat, if I was a joint of meat I would be well cooked, it's as hot as hell under the duvet. I normally turn it down to half, but I was so tired due to lack of sleep last night. Can't tell what my body is doing as I think I cooked my back and other joints! I MUST phone Rheumatology at NPT hospital today, chase things up. So, after cooking myself when I slept, am up and moving about, but as I'm doing so can now feel the aches and pains, obviously the heat jus...

Wednesday 12th March: Had the initial persistent pain meet up, learnt about different pains, and different families of pain killers, most interesting. Good to meet with others in the same boat. Now to work out my pathway, starting with medication review. Thursday 13th March: Nero today, he knows when I'm feeling down, sat beside me most of today. He's such a good dog. When I do move to a ground floor flat or bungalow I need to get my own dog. Slight twinges set in early evening. Friday 14th March: 4am - waking up in early hours with your left arm feeling like you want to crack open the bone and scratch inside it.... another reason why I hate fibromyalgia. Neck and back in agony too but not as much, 8 out of 10 - need the toilet, but it's difficult to move. So need help with nights like this, but I can't predict a fibro flare up at all. Maybe I should have taken that flat in that complex, but wasn't ready for that. Looking at what the council have, I DON'T WANT...

A friend of mine commented on  my post last night... "...Did you know they are no longer accepting fibromyalgia as a disability as Labour states it can be managed?" IF it can be managed, what with? my doctor has no idea what to prescribe me for it. Fibro affects people in many different ways. In my case it ramps up my daily pain, causes me to feel my bones are itching on the inside, I get brain fog and forget simple things.  It causes me stiffness and stops me in my tracks. I get woken all hours of the night, can't get back off to sleep. Can't get out of bed in the morning, even when accomplished that I end up trapped in my flat.  How can it be managed? I would like to know. Chain saw to chop off affected part? Sledge hammer to my head? I use part of my PIP to get CBD oil to take the edge off my pain, but even that don't get shot of it. I also use my PIP for my Motability car. Without that I would really be stuck. I suffer with social anxiety so public transport i...

Been to Morrisons today, had forgot my inhaler. Why is it when I take it with me I hardly ever need it, yet when I leave it at home I need it?  I got in to a bit of a panic and couldn't catch my breath - home now and feeling calm. I have no idea what caused it, I just felt my self going, so I held on to my trolly and found a quiet part of the store to calm down. There is a table in one part of the store at the far end away from the checkouts, so I headed there and sat. I need to talk to my doctor about this. These attacks are causing me problems, especially as I have no idea what is causing them. I need to sort out my anxiety issues as a matter of urgency, I am aiming to do a bus journey ahead of what I hope to be a pathway in to work in the new year. Maybe something is telling me to slow down? As I type this I am feeling a slight pain on the right hand side of my chest, am sure I will be ok. Early to bed for me. Sometimes I hate what my body throws at me, I really do.

  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain ...

  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p...