June 2025
Let me put this here as a reference to the levels of pain.
2nd: I should get out of bed, but hip killing and feeling strange again, neck also in agony.
I'm going to try to push through the pain, had a gabapentin and two paracetamol about half hour ago (keep some at side of bed). Pain at a distracting 5.
3rd: Slight pain, normal aches, a bit of an ok kind of day, pain at a 3. Got lots done today.
4th: 4:30am - Hell, fibro flare up, in great pain currently, hate being woken up by it. Pain is at a 8. I need the toilet but can hardly move. Gabapentin and paracetamol (lucky I keep then by the side of the bed) as soon as I can move a little and can reach the socket on the wall will turn the electric blanket on as heat helps.
It's always the same after a day of relative normality, and a day of getting things done, wallop, my body hits back, why don't I ever see this on the horizon?
5th: When your back is in agony and you are looking after a dog, you are struggling to move, and the dog looks at you, you know you must move, so you push yourself, the dog can see you are trying and seems to be encouraging you, standing close by you as you push yourself to tackle the stairs to the point you are in tears, the dog seems to be standing close, supporting you through pain and severe discomfort, every step hurting like hell.
Let Nero out for his pee, then had to get back up the stairs, being dragged by the dog, each stair excruciating, at the top the dog licks your hand as if to say thank you, once back in the flat acts like a support standing by and following you.
He's been a supportive dog helping and encouraging me, maybe I could use a support dog?
Now back in bed, electric blanket on, still in tears with a sleeping dog, there's a sleeping Neil in the other room, no use at all, Nero did try to raise him, but with no degree of success.
This is another reason why I need a ground floor or adapted accommodation... 🤔
#supportdog #fibromyalgia #persistantpain
6th: Neck is in great pain, every time I move it, it hurts, nothing is helping it. Back and left hip and knee also hurting. Pain at a 6. Still I have to push on.
7th: Not too good this morning, in agony on my left side as well as my back and neck, yesterday didn't help in Tesco. Bed day probably. Pain at about a 7 touching on 8.
9th: Achy Monday morning, can hardly move... Heat from electric blanket not easing it either - pain at about a 5.
Got a pain in my left side and at the bottom of my stomach.... Not feeling good at all.
Have things to do today ahead of tomorrow.
10th & 11th: Wasn't too good on Tuesday but had things to do, Wednesday felt ok so when out in the fresh air and warmth, which helped.
12th: guess I should get up. Need to pop to the shop later too. But right now need pain killers. Back and left hip in agony - pain at about a 7.
13th: Left hip hurts and lower back, found some freeze spray so gave that a try, not using those pain killing patches any more as we're making me itch. Going to keep up with the gabapentin and CBD oil too. Must chase my persistent pain service appointment up.
Oh.... just realised it's Friday 13th.... ahhhhhh crap 😩
14th: Feeling like I'm stuck under a gloomy cloud, can't pinpoint the reason. Achy but nothing too bad today, pain at about a 3.
I had a zoom job interview today, went well, should know next week if I am successful, if I am a move is on the cards, if not, I will throw myself in to being a pet & house sitter and give up radio.
15th: Every now and again I get an email that makes me question my situation, normally in relation to government plans. Today was one such day.
I currently suffer with multiple problems, and need all the support I get to try to work through them. I'm trying to help myself, at the same time as trying to attempt to find a way off being reliant on benefits, it's not easy. At the same time as doing this, I'm juggling another issue. The government needs to rethink the proposed benefit cuts. Support those in need such as myself. I want to be independent. I am also trying to share with the world my struggles with Ankylosyn Spondylitis and Fibromyalgia, to raise awareness and hopefully help others along the way.
16th: 1:30am - Damn it, the runs again, and only just got out of bed to the toilet.... Fibro ramped up, pain around and 8.
7:10am - Didn't sleep too good after waking up in the early hours. Going to be one of those days. Need to pick up my prescription somehow. Very achy, and feeling sick with it. Pain still around an 8, maybe starting to dip to a 7.
Managed to get to chemist, left knee was playing up and went very weak going down the steps outside, almost ended up on the floor. Home now, gabapentin had.
Drat, what I did yesterday evening I did again with same outcome. Was pottering about in the garden, when I did my back in again.... will I ever learn? My back is in agony.
17th: My lower back and left hip kills again, must have aggravated more than I thought #fedup. Got things to get done today, which will be a struggle.
18th: Been up half the night with back pain 🙈 it's not been a good night. But need to get up. Must plod on. I can't let pain win.
19th: Gonna be a hot one, can't find my other pair of black out curtains. My back and hip are in agony. Every time I move a shooting pain with every step and movement, very unpleasant.
In the evening: Got a pain in my chest, hurts a bit to breathe, my back is very achy and a little itchy, my lower back and left hip are killing
In short, I feel like crap, think a cool shower and bed (if I can get in the shower, and if I can get off the sofa!)
Feels like a fibro daytime attack, often get fibro in early hours, hardly ever in the evening.
20th: Thumping headache, all bunged up, aching and itchy from head to toe, along with my lower back and hip .... can we please have a big thunderstorm to get the humidity down?
Did have things to do today but don't think they will occur as not up to driving.
Been awake since 1am when it seemed like someone turned the humidity control up to full blast 😓
Drat it, trying to do things when your back and hip working together sending shooting pains up your back..... I'm sick of this, even CBD oil don't work on it.
21st: Didn't sleep too good, sweating all night, felt like scratching where the pain killing patch was, that didn't help the excruciating shooting pain when I had to go to the toilet or get another glass of water. Should cool down a bit by tomorrow... thank goodness The humidity don't help me at all - https://www.itsmyblog.me.uk/2025/06/high-humidity-fibromyalgia.html
At one point I did nod off, woke up with a slight mess.
22nd: Slept better last night, just wish this shooting pain would go when I stand up, sit down or move around, and as for the stairs..... excruciating.
23rd: Good night sleep, but when I start moving shooting pain starts. New week same old issues. Aiming to sort out massage for trapped nerve today, can't go on like this. Other aches and pains of my life still there, but while waiting for doc to sort out going private.
24th: Woken by the rain, lovely sound, made.me want a wee wee. Lower back in agony though today, took me half hour to get moving, not too bad I suppose, but dare not pay back down again. Must get out early, things to do, and something to get back for!. Pain at about a 6.
25th: Didn't do a blog post today
26th: I need to get out of bed, but don't feel like budging, got niggly aches and pains, nothing too bad - on the pain scale a 5 I guess. Had Nero today, he always knows how I feel.
27th:Very achy this morning, full of wind too, seagulls are awake... and are making a racket! thumping headache too.
Going to be getting more humid as weekend goes on, see the blog post I did on HUMIDITY & FIBROMYALGIA.
Gonna try to go back to sleep for a little bit longer.
28th: I slept awkward, right arm feels a bit numb and my right hip hurts too, hope that clears up. Back hurts as normal, as does my neck, but am used to that. Thumping headache too. Wonder if I can get out of the block today? Hope I get a ground floor accommodation soon.
29th: Humidity getting to me, feel like crap,non agony.
30th: Damn it, humidity is playing havoc.
Trouble breathing, head feels awful, when I move it feels painful... when is it getting fresher?
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