June 2025
Let me put this here as a reference to the levels of pain.
2nd: I should get out of bed, but hip killing and feeling strange again, neck also in agony.
I'm going to try to push through the pain, had a gabapentin and two paracetamol about half hour ago (keep some at side of bed). Pain at a distracting 5.
3rd: Slight pain, normal aches, a bit of an ok kind of day, pain at a 3. Got lots done today.
4th: 4:30am - Hell, fibro flare up, in great pain currently, hate being woken up by it. Pain is at a 8. I need the toilet but can hardly move. Gabapentin and paracetamol (lucky I keep then by the side of the bed) as soon as I can move a little and can reach the socket on the wall will turn the electric blanket on as heat helps.
It's always the same after a day of relative normality, and a day of getting things done, wallop, my body hits back, why don't I ever see this on the horizon?
5th: When your back is in agony and you are looking after a dog, you are struggling to move, and the dog looks at you, you know you must move, so you push yourself, the dog can see you are trying and seems to be encouraging you, standing close by you as you push yourself to tackle the stairs to the point you are in tears, the dog seems to be standing close, supporting you through pain and severe discomfort, every step hurting like hell.
Let Nero out for his pee, then had to get back up the stairs, being dragged by the dog, each stair excruciating, at the top the dog licks your hand as if to say thank you, once back in the flat acts like a support standing by and following you.
He's been a supportive dog helping and encouraging me, maybe I could use a support dog?
Now back in bed, electric blanket on, still in tears with a sleeping dog, there's a sleeping Neil in the other room, no use at all, Nero did try to raise him, but with no degree of success.
This is another reason why I need a ground floor or adapted accommodation... 🤔
#supportdog #fibromyalgia #persistantpain
6th: Neck is in great pain, every time I move it, it hurts, nothing is helping it. Back and left hip and knee also hurting. Pain at a 6. Still I have to push on.
7th: Not too good this morning, in agony on my left side as well as my back and neck, yesterday didn't help in Tesco. Bed day probably. Pain at about a 7 touching on 8.
9th: Achy Monday morning, can hardly move... Heat from electric blanket not easing it either - pain at about a 5.
Got a pain in my left side and at the bottom of my stomach.... Not feeling good at all.
Have things to do today ahead of tomorrow.
10th & 11th: Wasn't too good on Tuesday but had things to do, Wednesday felt ok so when out in the fresh air and warmth, which helped.
12th: guess I should get up. Need to pop to the shop later too. But right now need pain killers. Back and left hip in agony - pain at about a 7.
13th: Left hip hurts and lower back, found some freeze spray so gave that a try, not using those pain killing patches any more as we're making me itch. Going to keep up with the gabapentin and CBD oil too. Must chase my persistent pain service appointment up.
Oh.... just realised it's Friday 13th.... ahhhhhh crap 😩
14th: Feeling like I'm stuck under a gloomy cloud, can't pinpoint the reason. Achy but nothing too bad today, pain at about a 3.
I had a zoom job interview today, went well, should know next week if I am successful, if I am a move is on the cards, if not, I will throw myself in to being a pet & house sitter and give up radio.
15th: Every now and again I get an email that makes me question my situation, normally in relation to government plans. Today was one such day.
I currently suffer with multiple problems, and need all the support I get to try to work through them. I'm trying to help myself, at the same time as trying to attempt to find a way off being reliant on benefits, it's not easy. At the same time as doing this, I'm juggling another issue. The government needs to rethink the proposed benefit cuts. Support those in need such as myself. I want to be independent. I am also trying to share with the world my struggles with Ankylosyn Spondylitis and Fibromyalgia, to raise awareness and hopefully help others along the way.
16th: 1:30am - Damn it, the runs again, and only just got out of bed to the toilet.... Fibro ramped up, pain around and 8.
7:10am - Didn't sleep too good after waking up in the early hours. Going to be one of those days. Need to pick up my prescription somehow. Very achy, and feeling sick with it. Pain still around an 8, maybe starting to dip to a 7.
Managed to get to chemist, left knee was playing up and went very weak going down the steps outside, almost ended up on the floor. Home now, gabapentin had.
Drat, what I did yesterday evening I did again with same outcome. Was pottering about in the garden, when I did my back in again.... will I ever learn? My back is in agony.
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