April 2026

January and February dragged, March flew by, April...., slow down a little

1st: Slow start to it, don't rush me. 

Feel like my heart and my mind and my body has been minced up the past months, think I'm starting to put myself back together. My heads been in the shed. Been a bad day for sure.

2nd; Im feeling like crap, very low, close to tears, sorry can't do today.

Update 1 - can't seem to get today started, just lack energy.

Update 2 - So managed to get my.tablets taken, managed to make a cuppa.

Went outside and sat with the cat from downstairs - it was an effort to get back up stairs again.

Had a really bad evening and night, thanks to Babs for helping me and also Neil, kove you both.

3rd: Slept for most of the day, there are days that you just yave to.

4th: Happy Birthday to my sister. Lets see how today goes shall we. Feeling a bit liw, achy too, will take it easy.

5th: Happy Easter! Went to my sisters today, dispite a lack of sleep, not sure where my mind went last night, but it kept waking me up.

6th: Not long out of bed, feel like going back though. A bit achy, but nothing too bad. My left knee is weak and my left hip hurts too.

Slept a bit better last night thank goodness.

7th: Slept a bit today, but must have been needed. Neck, top of back, shoulders, left hip and knee playing up today, pains not really subsided today as it went on. Got parcel coming tomorrow.

8th: I should get up, parcel coming, bit on the achy side, feeling sick with it, and things to do as well ... here goes then (not done this for anwhile, pain 7 out of 10).

Edit @ 11:50am - Waiting for parcel, been outside moved some tubs, having a rest and cuppa before going back out in the garden. Aching even more now (8 out of 10 - will never learn will I?).

Edit @ 8:30pm  - I may have over done things some what today. Right arm and shoulder killing me, also back.

9th: I best get out of bed, need to do my injections, and take my tablets too. A bit achy but not as bad as yesterday (6 out if 10) left knee seems a bit weak too.

10th: Lower back in agony this morning, not too sure why, but things to do later - fed up with aches and pains.

11th: No update today, slept a lot.

12th: Been up half the night with the runs, not a good one, need to make my bed from scratch due to a small accident, couldn't get out of bed quick enough, left knee gave way again too.

EDIT & 1:45pm - Put some garden rubbish into a black bag, also made the bed from scratch AND done my hair, also a wash load. Now having a rest as my back is aching, cuppa and Great Canal Journeys on U&eden.

13th: Lower back and hips in agony this morning, tried to get out of bed and it really hurts. Lucky I have some gabapentin by the side of the bed.... Going to be one of those days I think.

Could have over done things yesterday.

Edit - a gentle walk really helped, eased but not got rid of.

Managed to get out in the garden this afternoon.

14th: Neck in agony this morning and left shoulder and arm, slept on the left side for too long me thinks, and my pillows moved. Pain at about a 7 out of 10. Need to get up though, things to do.

15th: Feeling headachy this morning, think I slept too heavy, a bit achy too but nothing that bad, pain at about 5 out of 10. Got parcels coming today.

9pm Update - Nodded off, woke up in tears... damn it, it's a rollercoaster for sure. Turning phone off, need quiet.

16th: Didn't sleep too good, felt really low, kept tossing and turning all night, very achy now too, and very exhausted. Going to have a day of rest, but also have things to do.

6:30pm update - No, can't shake the feeling of being low, so early to bed I think, heated blanket on and crap to watch.

17th: Not 100% better, but getting there, feeling a little down still but as said, getting there. Neck and top of back achy, along with shoulders and left arm (too long sleeping on left side I think again).

18th: Not too good this morning, thumping headache, feeling sick too.

A bit achy, but nothing too bad, left hip hurts, neck and top of back.

Should be better weather kicking in today, so need to try to pot up my sun flowers.

19th: I should get up I guess, will pot up my sunflowers today.

My back hurts this morning along with my hips 😞 lets see how this goes.

On getting out of bed my left knee felt very weak, lucky my crutch was close at hand!

Late update - Why is it, I find night time the hardest time of the day when all alone in the dark, feeling down and on edge? Feeling down and crappy. 

20th: 5am - Alone with the thoughts in my head, been awake since 3:30am #crying for a while, can't really do much in middle of the night to keep busy. My neck and left side hurts a bit too.

7:45am edit - it's going to be one of those days, totally drained, need sleep, must get up, things to do, no energy to make things happen, I need some animal time.

10:30am edit - Knew it was going to be a bad day, just been sick 😭

21st: Done it again, slept too heavy on my left side, arm feels like a dead weight, hip in agony, and lower back killing, but at least I slept! I must get out of bed, things to do, that's if I can manage to get going!

22nd: It's hump day, yes Wednesday, and how am I feeling today? Well headachy and my neck is clicky today, hurts like hell, also shoulders playing up and top of back.

That's what I hate about Ankylosyn Spondylitis and Fibromyalgia, never knowing what I will wake up with, it's like my body is a roulette table.

You don't know what its like living with a body like this until you have a serious autoimmune disease like Ankylosyn Spondylitis - it attacks your body.

5:10pm update - Fixed a problem in the car today, feeling proud I did so. See www.facebook.com/share/v/18SjSosTqL/

Feeling rather drained, it just sort of hit me like walking into a closed door - time to go with the flow I guess, as it's hard to push through it.

23rd: Drat, a fibromyalgia flare up, and I need to go to the chemist today.

Skin itchy, feels like I want to scratch inside my left hip, head feels like it's overloaded with signals, it's awful. Not sure how to manage today now. First it's gabapentin time and time for some cbd oil.

#fibromyalgiaawareness #fibromyalgia

24th: 5:30am - Woken up by a painful left wrist and thumb, not too sure what I've done too then, but I'm in agony, I do have Carpul Tunnel, was diagnosed yesrs ago when I was still living at home in Llanelli. I must look for my wrist support when I get up. Also my neck and left shoulder and lower back hurting too.... I hate waking up in pain, makes me miserable.

7:20am Edit - I should get out of bed I guess, do have things to do today, plus new injections are being delivered later.

25th: No real blog update today as over Gower, not much usable signal for mobile data where I am. Taking it easy, slept well, less achy. The cat and dog here are beautiful and keeping an eye on me.

Heading home later as roads in Swansea tomorrow are shut off for "Race For Life"!which don't end until about midday or later, and if I'm not home can't put a washload on to make use of my hour of free electric!

Sun is shining and it's warm with a cooling breeze. I've just realised this is a real blog update.... my mind has gone 🙄

26th: Morning everyone, birds singing and the sun is out in the blue sky, along with slightly streaming eyes - have a super day and check out https://go.refrl.co/r/cTFDSrCVUeXp

A bit achy, sort of agrovated my right shoulder and top of back when watering plants just now, I will survive. 

So did you see what happened at a White House Correspondence Dinner? someone tried to take shots at him again.... lets think who had cause to?, apart from most of the world affected by the growing cost of living and lack of things. Just saying he should stop the blockade and war.

27th: Woke up late, had to get to dentist, got there in time, what teeth are left are ok, but plan of attack is to file down one tooth and measure up for top dentures.

Home now, tablets had, bit achy but nothing too bad, so will push on, things to be done.

28th: A little achy, and have the runs too... never mind. Must get out of bed and water my plants, I'm pleased my other hydrangea has sprung into life, I was worried it was dead but no... It's alive!

29th: Neck and back in agony this morning, must figure out how to get down the stairs to water my hydrangeas... but first out of bed to get to my pain killers - owch, seems my left hip is in pain too.

Must do some recording today.

Almost at the end of April...., how did that happen?

Afternoon update - It's a beautiful day out there, but my hayfever is really playing up, sneezing and eyes are streaming too, I feel like crud. 

2nd afternoon update - Well a shower helped with my hayfever a little, but it's effect is wearing off.

30th: Woken up, with sore eyes, runny nose and feeling exhausted, plus my neck, back and left hip in agony - it's going to be one of those days, headache too. Last day of April today.