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Showing posts with the label #fibroblogger

Fibro - It Continues

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  I have just the other day had my 'Migration to Universal Credit' letter through the post, so have filled in the online form and now wait. Getting it has made me decide to push on with more of a blog on Fibromyalgia and Anxiety, to name just two things that run my life. Just yesterday I made a massive decission to stop doing my voluntary work with SA Radio Live, the local community station for Swansea. There is a very good reason for this. I am finding my new time slot a difficult one to cope with. My slot was at the end of the day, and getting through it leaves me totally exhausted. It hasn't been an easy choice to make as I do live doing my show with them. At the same time, I have decided to keep doing my home recorded 1 hour show for Islands FM as this will give me a bit of an escape and take my mind of things in a small way. I do need to put my health first. I have joined a few groups on line for Fibromyalgia and am awaiting my GP to get me in with the Persistant Pain

Fibro in my world

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  Rhumatology department at Neath Port Talbot Hospital refered me to the Fibromyalgia Clinic. I had a phone call from the clinic yesterday, and thought I would do a blog to show how my life an Fibro co-exist. I can tell you I have reminders on my phone and bits of paper pinned to the wall. Forgetting what I got up to do is the norm for me, as is forgetting words. Here we go then with the first night time report and the start of the day. Thursday 1st August: A night of interupted sleep, was too hot in the flat to sleep, the downside of a lack of sleep is a body that won't function as it should, so lets see how the day pans out. Pain this morning is at about a 5 out of 10, I took all my dose of Gabapentin yesterday. The day continued, and when I went to bed the pain had risen to about 6 out of 10. Friday 2nd August: In the early hours of this morning woke up to fibro tingling, but because I took all my doseage of Gabapentin, it didn't turn in to much. When I got out of bed my p