May 2025
We are in May, the month of my 50th. The month started ok, not too achy or in too much pain, about a 4 on the scale of things.
2nd: Had runs in the middle of the night but didn't get out of bed quick enough again. Just as I thought things were looking better.... false sense of security on that one. Pain at about 5..
Over did it again today, the pain killers patches not working, as pain is at about a 7 right now, things to do but can't. Here's a reminder....
I also had to change the sheet on my bed again, had another accident in bed and couldn't get out of bed fast enough. I'm fed up of this.
Over did it again today, pain in the evening was about a 6. Pain patch on and gabapentin had. Wish the persist pain service would hurry up with the meds review so I can try some of the other things they do to help me manage the pain and fibro.
4th: Woke up in early hours was fine, not much in the way of aches and pains, woke up just now and owch, feels like my back has seized up and my left hip and knee are killing (feel like cracking open my hip and scooping out what's in side, it's that kind of feeling, itchy with it)
All that within about 5 hours, so fed up.
I must look ahead to tomorrow, setting off from Swansea at about 9:30 / 10pm to head to Heathrow. Have allowed time for toilet and refreshment breaks, and will go at a steady speed of 50mph.
7th: After driving all day yesterday, last night pain was at a 7, this morning a 5. Had a good sleep, it was needed. May have overdone today somewhat, got in 20,000 steps, don't ask show or why, but pushing through pain barriers is NOT a good thing.... ever, no matter how many times you sit to admire the views. Feeling like an achy mess right now, every part of me hurts.
I did see an amazing water fountain view the video at https://vm.tiktok.com/ZNd692km7/
11th: After a great holiday, am home. Achy and sunburnt. Cuppa and bed after being on the go from 1am! On my holiday I discovered a great radio station, Nostaglgie - https://nostalgie-radio.de
12th: Achy and sore from sunburn, pain at a 5. Knee and left hip hurts but not too bad.
13th: Didn't sleep much, kept waking myself up thanks to sunburn pain on my neck. Pain at about a 5 maybe borderline 6. Took car to fill up with petrol and to get car washed.
Got home and tripped going upstairs. Feeling drained.
14th: Pain at about a 5 out of 10. Waiting for doctors to phone.
15th: Left hip and lower & mid back in pain this morning, about a 5 / 6. Bit drained as didn't sleep too well. Went to pick something up off the floor that I had dropped (another mug gone) and what pain in my left hip and back, about an 8.
16th: Just been sick, back in agony... pain at about a 6, let's try to get moving to see if it eases a little - time to push through (well to get to the pain killers first!).
Feeling wiped out totally, a bit stressed and fed up too. Need to chill, so a cold drink and lay down in my cool bedroom.
Staying off line for the rest of the day, text if you need me.
17th: Feeling drained, was woken up by someone's dog that was let outside at about 2am, it kept barking until about 5am, it also started another dog barking.
If your dog needs a pee in the night, get dressed and walk it, don't just let it out the back and wake the neighbourhood by barking for hours on end.
Also very achy and sick this morning, can't pinpoint where, and got a pain in the right side too. Pain at about a 6.
18th: Was sick in the early hours, had the runs too, not a good night's sleep. Back been in agony all day, pain about 7 to start the day, finally subsided to a 6.
19th: Waking up NOT feeling sick.... now that makes a change! am in pain though, about a 5 this morning. Need to get my prescription today as run out of some things yesterday, also need to pop to Dad's.
20th: Had to get up early, despite feeling sick with pain, slow start, pain at about a 6/7. Had to get to doctors for blood pressure.
I could really do with help some mornings.
21st: Still in bed, guess even I need a lay in... last few days been up early and pushing myself too much, not today - just a few extra hours.
EDIT: Woops, longer than expected, just under 3 hrs extra in bed, there goes the morning! Must get out of bed, bottom part of back in agony this morning. Pain at about a 7.
22nd: Been trying to get out of bed for 2 hours, need the toilet... If I don't get to it soon there will be a mess to clear up. In great pain and need to get the day going. Not a good day to feel like this at all. Pain at about an 8 at 4:30am, and same at 6:30am 😩
24th: Had a painful start, took ages to get out of bed, then had to get help to get downstairs. that took time. Hip and lower back played up most of the day. Pain ranged from about an 8 first thing to a 6 later in the day.
25th: Well I'm awake, had a crash moment last evening, was in bed just after 7. Must have needed the sleep! Tablet time! Pain today at about a 5 at this time.
Was just sorting my recycling out and aggravated my back, damn it, also seem to have a pain in my left side, I'm falling to bits. I'm really fed up, I try to keep active yet every time I seem to cause pain to myself, seems I can't win.
26th: Back is in agony again this morning, neck, left shoulder and hip too, think I slept awkward. Pain at a 7. How can I help my Dad out when I'm in so much pain? getting down the stairs is a huge issue for me, but then again so is getting out of bed. Between Fibromyalgia and Ankylosyn Spondylitis my life sucks.
11am: FINALLY out of bed, was a real struggle this morning.
27th: In agony again this morning, both hips in agony, lower parts of back too - fibromyalgia reared it's head again, damn it.
STILL waiting for Persistent Pain Clinic to schedule first appointment for meds review and progress on from there with other appointments.
I've reached out for the help and it's isn't forthcoming.
28th: Horrible itchy feet today, been a while since I had them. Back and left hip in agony too. Pain at about a 6 out of 10. Did my poo stick thing for bowel cancer screening, need to post that.
29th: I should get up, but don't want to, but need to. Nero day today and injections are coming. So achy and tired.
Having to go back and edit my blog posts.
I must say sorry to sister and family.
Need to take few pain killers and get some sleep, been feeling fibro twinges all afternoon.
30th: Damn it can hardly move, stuck in bed, arms very achy, neck stiff, back killing hips in agony. Fibro at full volume. I KNEW this was heading my way yesterday afternoon, but even gabapentin and CBD oil didn't do a thing to prevent it.
It's made my day a waste of time, hours of not being able to do a thing.
Been in pain all day, not liked today at all.
Arms are really achy and feel like they weigh a ton.
A certain someone said a few months ago it's all in my head, and it's not real, I say to them sod off!
31st: Feeling sick this morning, neck and back hurting, left hip feels like I want to crack it open and scoop it's insides out, what is causing that feeling? had it before and it's a horrible one.
My arms are peeling from sunburn, how to you scratch it when your arms are tender to the touch (one part of fibro)
You may have heard me mentioning I've applied for jobs and I want to work. How on earth am I going to be able to do that when I can't even get out of bed when I want to? How am I going to do the things in life I want to do? I do push myself, sometimes too much and then my body fights back.
Unless you live in my shoes you will never know the suffering. There are many around the world with fibromyalgia who do. Sending love to all my followers / readers. Would be nice to get some comments.
#fibro #fibromyalgia #chronicpain #pain #heathblogger #dailylife #dailystruggles #fibrowarrior
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