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Showing posts with the label #chronicpain

Ouch 19th to 22nd May 2022

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  19 th to 22 nd May 19th May Fibromyalgia is at it again, I had a feeling it would yesterday, pain up to about an 8.5 out of 10.   As I have mentioned before, Fibro is like an amplifier for the pain that I suffer with anyway. I have learned to live with it, I just carry on. Ok pain.... I'm going knock you down, or at least block you out!... it's all about pain management and learning to try to deal with it and not let it deal with you. Edit 1:45pm; finally starting to ease, been trying to focus my mind on other things to get my brain to turn down the pain it's at 6.8 out of 10. Edit 8:30pm; pain down to a 4, will it ever go down lower? I'm always in some kind of constant pain   20th May Thumping head this morning, is there a storm on the way? Sure do feel like it 21st May Not long up, very achy this morning but will get by, fighting the pain again, trying to take my mind off it, it's a difficult thing to do, but it can be accomplished if I t

Mental and Physical

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This week has been mental health awareness week.  I suffer with physical issues; Ankylosing Spondylitis, Osteoarthritis and Fibromyalgia. Fibromyalgia acts as a kind of amplifier, boosting the pain, and other issues.  These physical issues really affect my mental health  I get frustrated and stressed when I fail to do every day tasks. Currently, I have a problem with my left eye. Started off with floaters, and at the end of last year went blurry. I am awaiting an operation, that was due to take place, as I was led to believe, earlier in the year. I was then  told that my good right eye needs to deteriorate before they will do any operation.  Having a blurry eye is really reducing my enjoyment of life. Even though I have been given the green light for driving by the DVLA, I am unable to enjoy it and therefore find myself staying as local as possible. Going for long drives has gone out the window, so I can go to see friends and family. I contacted my local councillor, Paul Ll

Right teams up with Left

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Feeling fed up right now. My blurry eye is pissing me off right now and the floaters I can see too, the 25th May can't come soon enough. Fed up of my aches and pains. On the 8th May it was my birthday, I needed to get out. Managed a short walk around Clyne and then the Marina, all the time in pain, but trying to keep going. My left hip has been playing up for a while, and now the right one seems to want to join in. It's like my entire body is ganging up on me. Co-codamol, Gabapentin and CBD oil - the three things that help reduce, but not much. Now, why is CBD oil so expensive? Monday I went to see Juliet, she understands what I am going through. Had a hot chocolate and a catch up chat. I wonder when hospital appointments are going to start back up again? I really need a letter to get me moved out in to a ground floor flat. St Thomas or Mount Pleasant would be cool for me.

Early May 2022

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 Early May, and what a start to my birthday month it was 2nd May:  Every bone in my body is aching, my throat is sore, it hurts to talk, cold then hot then cold, been sneezing, been sick, got a headache... what is this thing I've got? and how have I caught it? Well it's not Covid, but still, how did I catch anything? I've kept wearing the mask even after the Welsh Government said we no longer had to. I've been really careful! 3rd May: Feeling a little better, but got a feeling my back is gonna be hitting me tomorrow 4th May: Just after 3am and OWWWWWWCCHHHH Aching from head to toe, slight high pitched noise in my ears, tingly all over, Fibromyalgia working with my Ankylosing Spondylitis to woke me up, hate this, I really hate this. Pain at level 9.5 out of 10 5th May: So after my full allowance of Co-Codamol, and Gabapentin backed up with 10 doses of CDB oil, the pain has FINALLY gone down to 7 out of 10, still not a good level but its getting there FACTS : The Co-

March & Early April 2022 Health Update

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9th & 10th MARCH Yesterday afternoon (9th March) : Not feeling too good, back killing me to the extent it is painful to breathe, was alright when I woke up. Feeling really drained and a little sick. Pain killers just not helping  Laying on my bed, hot water bottle in middle of back, heat is helping a little, this could be a very long afternoon This morning (10th March) : Back a bit better, after about 6 hot water bottles and a nights sleep, still hurts when I take deep breaths, so even that's an improvement.  Wednesday 30th  MARCH So, another day in excruciating pain (9 out of 10), tingly skin, thumping head, took me a while to pick my phone up  and type this... it is only 3am. Hate this feeling, no amount of CBD oil or co-codamol will have any affect and being woke up by it really sucks. It's 7am and I am still in great pain all over, can hardly move, so fed up.  I must try and get up... somehow, can't spend all day in bed, knowing the kitchen needs a clean is dr

27th Jan to 1st Feb 2022

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27th Jan Covid has scared me in to online shopping, I've not been able to see friends I love, not been able to cuddle or hug friends. I know friends who haven't had their jabs and am constantly worrying about them, I've lost a few dear friends too, just last week two funerals on one day, I couldn't go due to numbers and my health, my heart felt like it was being pulled two ways. I need to hug people, I need to see friends, I need to be happy, right now I feel fed up, stressed out, pissed off with everything, life seems right now to be a big pile of crap. 30th Jan The last few days have been awful, been in agony, also have had to put drops in my left eye and keep it covered up. I've spent most of the time in bed, in and out of sleep. 1st Feb So the start of a new month, nothing changes. Woke up with neck in agony and most of the upper part of my back. Feeling sick with the pain. My mood is really low right now, feel so depressed and useless. I want my lif

Phil's Video Blog 220 / Phil's Food Network - Where Food Looks Good 2

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Phil's Video Blog 220 view it at https://youtu.be/1evtteSNhV4 This video is also 'Phil's Food Network - Where Food Looks Good 2', you could say 2 videos for the price of 1! In today's video I make Potato & Cheese Bread from a recipe I saw on YouTube, and added to it for my tastes! Here's the recipe- The Bread: 90g Strong Flour (bread flour) 55g Milk A little Himalayan Salt For Frying: Melted Unsalted Butter / Olive Oil The Insides: 1 Potato (medium size) 2 Tablespoons Mayonnaise Grated Extra Mature Cheese Sprinkle of Parsley Sprinkle of Dried Chopped Garlic For Frying: Melted Unsalted Butter / Olive Oil Why not check out some designs that I have created if you suffer with Chronic Pain or Fibromyalgia Chronic Pain - visit https://www.redbubble.com/shop/ap/90959680?asc=u Fibromyalgia - visit https://www.redbubble.com/shop/ap/90962177?asc=u Don't forget my radio shows , which you can listen again via www.radiocatchup.site Saturday Breakfast - 7am til 10

Wallop; what a life... NOT!

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 It is sure annoying, when you go somewhere and can't do what you really want to do because the pain is so great. Was down in Wallington dog and house sitting, and went out to walk the dog, Nikki, in Richmond Park. Started out ok, but soon went down hill. My knees started playing up clicking and popping, then my left hip followed by my lower back. Had to sit down and take a few pain killers. The next thing that occured wass I started to get problems with my breathing and a tight chest, nothing too bad, but enough to knock the wind out of my sails.  Headed back to the car and went back to the house. Once back I tried to relax and rest. Even sitting out in the sun in the garden didn't really help. The heat did with my back and other body pains, but the air was so still, dry and hot that I could hardly breath. Later in the evening I started to get more pain, all over, pins and needles overload, thumping headache and felt clammy. Had to go to bed, even though I wanted to watch a fe

Just what is my life like?

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Living with spondylitis, a type of inflammatory arthritis, comes with a long list of  symptoms . Alongside characteristic symptoms like back pain, a common complication of spondylitis and other inflammatory conditions is  cognitive impairment , or “brain fog." This includes mental changes like temporary memory loss, forgetfulness, and difficulty remembering words and phrases. Forgetting what you were about to say can be embarrassing, and not being sure if you took your medications can be scary. Luckily, there are some ways to manage memory loss and live better with spondylitis. What Does Memory Loss With Spondylitis Feel Like? As with any spondylitis symptom, each person experiences memory loss differently and to different degrees. Some MySpondylitisTeam members have shared that they feel as if their minds are in a confused fog, like one who wrote, “I have memory loss and fogginess.” Another member described her memory loss and brain fog as affecting mostly her short-t